SOCIAL ASPECTS OF LIFE FOR FAMILIES OF CHILDREN AFTER SURGERY FOR CONGENITAL HEART DEFECTS
Introduction. Despite the fact that in most cases the operation to normalize or significantly improve the physical condition of the child with congenital heart disease (CHD), many studies show a decline in the quality of life of these patients. The purpose of this study - the study of social and psychological problems in families of children with CHD. Material and methods. Survey data included 1679 relatives of children who underwent surgery for correction of various CHD. Questionnaires included questions about the social aspects of life for families of children with CHD, attendance by children of preschool educational institutions, and emerging form of learning difficulties with him, amount of physical activity, exercise tolerance, psychological difficulties associated with the disease, limitations arise in families of children with CHD. Results. Not working 794 (47.9%) mothers of a child with CHD, 132 (8.0%) cases, the parents have difficulties with employers in connection with CHD in the child. In 712 (42.4%) cases, parents have been required various information on issues related to CHD. In 368 (21.9%) cases were observed in a child psychological difficulties associated with CHD. In the late postoperative period in 328 (19.5%) families were difficulties associated with the presence of CHD in the child, of which 73 were associated with limitation of parents in employment and financial difficulties, 30 - limitation on education because of fears for health of the child, 24 with limited communication. Conclusion. Improving the health, social and psychological assistance to improve the quality of life of patients with CHD.